Trundell D, Skalicky A, Staunton H, et al. Development of the SMA Independence Scale–Upper Limb Module (SMAIS–ULM): A novel scale for individuals with Type 2 and non-ambulant Type 3 SMA. Journal of the Neurological Sciences. 2021:117318.
Klassen AF, Rae C, Gallo L, et al. Psychometric Validation of the FACE-Q Craniofacial Module for Facial Nerve Paralysis. Facial Plast Surg Aesthet Med. Apr 7 2021.
Regnault A, Meunier J, Ciesluk A, et al. Providing Meaningful Interpretation of a Performance Outcome Measure by Co-Calibration with a Patient-Reported Outcome: Illustration with Widely Used Multiple Sclerosis Measures. Paper presented at: ISOQOL (Cutting Edge Research plenary session)2020.
Drozdowska BA, Elliott E, Taylor-Rowan M, et al. Cardiovascular risk factors indirectly affect acute post-stroke cognition through stroke severity and prior cognitive impairment: a moderated mediation analysis. Alzheimer's Research & Therapy. 2020;12(1):85.
Taylor-Rowan M, Keir R, Cuthbertson G, Shaw R, Drozdowska B, Elliott E, et al. Pre-Stroke Frailty Is Independently Associated With Post-Stroke Cognition: A Cross-Sectional Study. J Int Neuropsychol Soc. 2019;25(5):501-506.
Taylor-Rowan M, Cuthbertson G, Keir R, Shaw R, Drozdowska B, Elliott E, et al. The prevalence of frailty among acute stroke patients, and evaluation of method of assessment. Clinical rehabilitation. 2019;33(10):1688-1696.
Shaw RC, Walker G, Elliott E, Quinn TJ. Occurrence Rate of Delirium in Acute Stroke Settings: Systematic Review and Meta-Analysis. Stroke. 2019;50(11):3028-3036.
Shaw R, Drozdowska B, Taylor-Rowan M, Elliott E, et al. Delirium in an Acute Stroke Setting, Occurrence, and Risk Factors. Stroke. 2019;50(11):3265-3268.
Regnault A, Boroojerdi B, Meunier J, Bani M, Morel T, Cano S. Does the MDS-UPDRS provide the precision to assess progression in early Parkinson's disease? Learnings from the Parkinson's progression marker initiative cohort. Journal of neurology. 2019.
Pendrill LR, Cano SJ, editors. NeuroMET Memory Metric version 0.1. IAGG-ER: International Association of Gerontology and Geriatrics for the European Region; 2019; Stockholm, Sweden.
McDicken JA, Elliott E, Blayney G, et al. Accuracy of the short-form Montreal Cognitive Assessment: Systematic review and validation. Int J Geriatr Psychiatry. 2019;34(10):1515-1525.
Kamunodi P, McBurney R, Schiffon W, Kolaczkowski L, Schmidt H, Santiago L, et al. Building effective patient engagement in drug development: An example based on people with MS collaborating with a pharmaceutical company. ISOQOL; 2019; San Diego, CA, USA.
Fillmer A, Melin J, Pendrill L, Goschel L, Cano S, Aydin S, et al. Towards a better understanding of Alzheimer’s Disease: Rasch transformation of cognitive assessment data yields better linear description of cognition using neurometabolite concentrations as explanatory variables. International Society for Magnetic Resonance in Medicine; Montreal, Canada, 2019.
Elliott E, Drozdowska BA, Taylor-Rowan M, Shaw RC, Cuthbertson G, Quinn TJ. Who Is Classified as Untestable on Brief Cognitive Screens in an Acute Stroke Setting? Diagnostics (Basel). 2019;9(3).
Cleanthous S, Regnault A, Mork A, Cano S, Morel T. Mixed methods psychometrics for the development of patient-centered outcome measures in rare diseases: the example of myasthenia gravis symptom PROs. ISOQOL; San Diego, CA, USA, 2019.
Strzok S, Cleanthous S, Pompilus F, Cano SJ, Marquis P, Cohan S, et al. Development of a gait module to complement the 12-item Multiple Sclerosis Walking Scale: a mixed methods study. Multiple Sclerosis Journal. 2018;4(2):2055217318783766.
Regnault A, Boroojerdi B, Meunier J, Bani M, Cano S. A Psychometric Analysis of the MDS-UPDRS-II and -III in Early Parkinson’s Disease: Do the Numbers Add Up? International Congress of Parkinson’s Disease and Movement Disorders; October 8; Hong Kong, China, 2018.
Quinn TJ, Elliott E, Langhorne P. Cognitive and Mood Assessment Tools for Use in Stroke. Stroke. 2018;49(2):483-490.
Quaglia M, Belloti C, Cano S, Cryar A, Deane K, Divieto C, et al. Better measurement for improved diagnosis and management of Alzheimer’s disease: Update on the EMPIR NeuroMET project. Alzheimer's Association International Conference; Chicago, IL, USA, 2018.
Cleanthous S, Strzok S, Pompilus F, Cano S, Marquis P, Cohan S, et al. Addressing the targeting range of the ABILHAND-56 in relapsing–remitting multiple sclerosis: A mixed methods psychometric study. Multiple Sclerosis Journal - Experimental, Translational and Clinical. 2018;4(2):2055217318776990.
Cleanthous S, Cano SJ. Theories behind dystonia scale development. In: Dressler A, Krauss, editor. Treatment of Dystonia. Cambridge: Cambridge University Press; 2018.
Petrillo J, Cadavid D, Castrillo-Viguera C, Cleanthous S, Pompilus F, Strzok S, et al. Expanding Our Understanding of Daily Life Activity Impact in Patients with Multiple Sclerosis. 7th Joint ECTRIMS-ACTRIMS Meeting; Paris, France, 2017.
Hurt C, Cleanthous S, Newman SP. Further explorations of illness uncertainty: Carer's experiences of Parkinson's disease. Psychology & Health. 2017;32(5):549-66.
Cleanthous S, Cano S, Kinter E, Marquis P, Petrillo J, You X, et al. Measuring the impact of multiple sclerosis: Enhancing the measurement performance of the Multiple Sclerosis Impact Scale (MSIS-29) using Rasch Measurement Theory (RMT). Multiple Sclerosis Journal – Experimental, Translational and Clinical. 2017;3(3):2055217317725917.
Chen SY, Strzok S, Cleanthous S, Pompilus F, Cano S, Marquis P, et al. Development of a Gait Module to Complement the 12-item Patient-Reported Multiple Sclerosis Walking Scale. American Academy of Neurology 2017 - 69th Annual Meeting; Boston, MA, USA, 2017.
Chen SY, Pompilus F, Strzok S, Cleanthous S, Cano S, Marquis P, et al. Patient-Reported Outcome Measurement in Manual Ability for Multiple Sclerosis: Addressing the Targeting Issues of the ABILHAND (P3. 364). American Academy of Neurology Boston, MA, USA, 2017.
Chen SY, Pompilus F, Strzok S, Cleanthous S, Cano S, Marquis P, et al. Development of a Conceptual Framework for Daily Life Activities in Patients with Early Stage Relapsing-Remitting Multiple Sclerosis. 32nd Congress of the European Committee for Treatment and Research in Multiple Sclerosis; London, UK, 2016.
Baker K, Barrett L, Playford ED, Aspden T, Riazi A, Hobart J. Measuring arm function early after stroke: is the DASH good enough? Journal of neurology, neurosurgery, and psychiatry. 2016;87(6):604-10.
Rakusa M, Cano SJ, Porter B, Riazi A, Thompson AJ, Chataway J, et al. A predictive model for corticosteroid response in individual patients with MS relapses. PloS one. 2015;10(3):e0120829.
Hobart J, Cleanthous S, Zajieck J, Cano S. CONFUSION IN CLINICAL TRIALS OF ALZHEIMER'S DISEASE. Journal of Neurology Neurosurgery & Psychiatry. 2015;86:e4.
Cano S, Cleanthous S, Marquis P, Hobart J, Naoshy S, Mikol D, et al. Measuring the Impact of Multiple Sclerosis: Enhancing the Performance of the Msis-29 and Msws-12. ISPOR; Milan, Italy, 2015.
Cano S, Cleanthous S, Marquis P, Hobart J, Naoshy S, Mikol D, et al. Measuring the Impact of Secondary Progressive Multiple Sclerosis (Spms) in the Ascend Trial: Equating the Msis-29, Msws-12, Abilhand-56 and Sf-36. ISPOR; Milan, Italy, 2015.
Cano S, Cleanthous S, Marquis P, Hobart J, Naoshy S, Mikol D, et al. Measuring Upper Limb Function In Multiple Sclerosis: Enhancing The Abilhand’s Performance. ISPOR; Philadelphia, USA, 2015.
Cano S, Cleanthous S, Kinter E, Hobart J, Marquis P, Petrillo J, et al. Measuring the impact of multiple sclerosis: enhancing the MSIS-29's performance. Congress of European Committee for Treatment and Research in Multiple Sclerosis; Barcelona, Spain, 2015.
Barrett L, Cano S, Zajicek J, Hobart J. Lending a hand: can DASH items help ABILHAND improve manual ability measurement in multiple sclerosis? Multiple sclerosis (Houndmills, Basingstoke, England). 2015;21(5):612-21.
Jellie B, Sweetland J, Riazi A, Cano SJ, Playford ED. Staying at work and living with MS: a qualitative study of the impact of a vocational rehabilitation intervention. Disability and rehabilitation. 2014;36(19):1594-9.
Cano SJ, Mayhew A, Glanzman AM, Krosschell KJ, Swoboda KJ, Main M, et al. Rasch analysis of clinical outcome measures in spinal muscular atrophy. Muscle & nerve. 2014;49(3):422-30.
van Seventer R, Vos C, Giezeman M, Meerding WJ, Arnould B, Regnault A, et al. Validation of the Dutch version of the DN4 diagnostic questionnaire for neuropathic pain. Pain Pract. 2013;13(5):390-8.
Posner HB, Cano S, Carrillo MC, Selnes O, Stern Y, Thomas RG, et al. Establishing the psychometric underpinning of cognition measures for clinical trials of Alzheimer's disease and its precursors: a new approach. Alzheimer's & dementia : the journal of the Alzheimer's Association. 2013;9(1 Suppl):S56-60.
Mayhew AG, Cano SJ, Scott E, Eagle M, Bushby K, Manzur A, et al. Detecting meaningful change using the North Star Ambulatory Assessment in Duchenne muscular dystrophy. Developmental medicine and child neurology. 2013;55(11):1046-52.
Hobart J, Cano S, Posner H, Selnes O, Stern Y, Thomas R, et al. Putting the Alzheimer's cognitive test to the test II: Rasch Measurement Theory. Alzheimer's & dementia : the journal of the Alzheimer's Association. 2013;9(1 Suppl):S10-20.
Hobart J, Cano S, Posner H, Selnes O, Stern Y, Thomas R, et al. Putting the Alzheimer's cognitive test to the test I: traditional psychometric methods. Alzheimer's & dementia : the journal of the Alzheimer's Association. 2013;9(1 Suppl):S4-9.
Hobart J, Cano S, Baron R, Thompson A, Schwid S, Zajicek J, et al. Achieving valid patient-reported outcomes measurement: a lesson from fatigue in multiple sclerosis. Multiple sclerosis (Houndmills, Basingstoke, England). 2013;19(13):1773-83.
Barrett LE, Cano SJ, Zajicek JP, Hobart JC. Can the ABILHAND handle manual ability in MS? Multiple sclerosis (Houndmills, Basingstoke, England). 2013;19(6):806-15.
Mayhew AG, Eagle M, Scott E, Bushby KMD, Adnan M, Muntoni F, et al. Trial readiness: clinical interpretability of change scores of the North Star Ambulatory Assessment in Duchenne muscular dystropy. 17th International Congress of The World Muscle Society; Perth, Australia, 2012.
Hobart JC, Cano SJ, Thompson AJ, Andrich D. It's time to change the way we measure change: demonstration, explanation, recommendations. 28th Congress of the European Committee for Treatment and Research In Multiple Sclerosis; 2012; Lyon, France.
Ho AL, Scott AM, Klassen AF, Cano SJ, Pusic AL, Van Laeken N. Measuring quality of life and patient satisfaction in facial paralysis patients: a systematic review of patient-reported outcome measures. Plast Reconstr Surg. 2012;130(1):91-9.
Mayhew A, Cano S, Scott E, Eagle M, Bushby K, Muntoni F. Moving towards meaningful measurement: Rasch analysis of the North Star Ambulatory Assessment in Duchenne muscular dystrophy. Developmental medicine and child neurology. 2011;53(6):535-42.
Cano SJ, Barrett LE, Zajicek JP, Hobart JC. Beyond the reach of traditional analyses: using Rasch to evaluate the DASH in people with multiple sclerosis. Multiple sclerosis (Houndmills, Basingstoke, England). 2011;17(2):214-22.
Baker K, Cano SJ, Playford ED. Outcome measurement in stroke: a scale selection strategy. Stroke. 2011;42(6):1787-94.
Zajicek JP, Cano SJ, Barrett LE, Hobart JC. Beyond traditional psychometric methods: Can Rasch help the DASH? . ISOQOL; 2010; London, UK.
Regnault A, Gilet H, Meerding WJ, Arnould B. Methodological challenges for the evaluation of patient-reported screening tools: Example of a neuropathic pain screening tool. 31st Annual conference of the International Society for Clinical Biostatistics (ISCB); 2010; Montpellier, France.
Freeman RG, Cano S, Slade A, Delatycki M, Tai G, Hobart J. Cross-cultural Comparisons: Lessons from Friedreich's Ataxia ISOQOL; London, UK, 2010.
Cano SJ, Thompson AJ. How to measure the effects of rehabilitation. In: Kesselring, Comi, Thompson, editors. Recovery in Multiple Sclerosis. Cambridge: Cambridge University Press; 2010.
Cano SJ, Posner HB, Moline ML, Hurt SW, Swartz J, Hsu T, et al. The ADAS-cog in Alzheimer's disease clinical trials: psychometric evaluation of the sum and its parts. Journal of neurology, neurosurgery, and psychiatry. 2010;81(12):1363-8.
Baker K, Playford ED, Cano SJ. Reaching the right decision: Proposal of a scale selection strategy in stroke research. ISOQOL; 2010; London, UK.
Hobart J, Cano S. Improving the evaluation of therapeutic interventions in multiple sclerosis: the role of new psychometric methods. Health technology assessment (Winchester, England). 2009;13(12):iii, ix-x, 1-177.
Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Movement disorders : official journal of the Movement Disorder Society. 2009;24(7):984-92.
Cano S, Posner H, Aisen P, Selnes O, Stern Y, Thomas R, et al. The ADAS-cog's performance as a measure—lessons from the ADNI study: Part 2 - evaluation using modern psychometric methods. 61st Alzheimer's Association International Conference on Alzheimer's Disease; Vienna, Austria, 2009.
Cano SJ, Warner TT, Thompson AJ, Bhatia KP, Fitzpatrick R, Hobart JC. The cervical dystonia impact profile (CDIP-58): can a Rasch developed patient reported outcome measure satisfy traditional psychometric criteria? Health Qual Life Outcomes. 2008;6:58.
Sweetland J, Riazi A, Cano SJ, Playford ED. Vocational rehabilitation services for people with multiple sclerosis: what patients want from clinicians and employers. Multiple sclerosis (Houndmills, Basingstoke, England). 2007;13(9):1183-9.
Cano SJ, Warner TT. Dystonia rating scales. In: Warner TT, Bressman S, editors. Clinical Diagnosis and Management of Dystonia. Oxford: Informa Healthcare; 2007.
Cano SJ, Warner TT. Dystonia and quality of life. In: Warner TT, Bressman S, editors. Clinical Diagnosis and Management of Dystonia. Oxford: Informa Healthcare; 2007.
Cano SJ, Thompson AJ, Bhatia K, Fitzpatrick R, Warner TT, Hobart JC. Evidence-based guidelines for using the Short Form 36 in cervical dystonia. Movement disorders : official journal of the Movement Disorder Society. 2007;22(1):122-6.
Bakheit AM, Shaw S, Barrett L, Wood J, Carrington S, Griffiths S, et al. A prospective, randomized, parallel group, controlled study of the effect of intensity of speech and language therapy on early recovery from poststroke aphasia. Clinical rehabilitation. 2007;21(10):885-94.
Riazi A, Cano SJ, Cooper JM, Bradley JL, Schapira AH, Hobart JC. Coordinating outcomes measurement in ataxia research: do some widely used generic rating scales tick the boxes? Movement disorders : official journal of the Movement Disorder Society. 2006;21(9):1396-403.
Cano SJ, Hobart JC, Edwards M, Fitzpatrick R, Bhatia K, Thompson AJ, et al. CDIP-58 can measure the impact of botulinum toxin treatment in cervical dystonia. Neurology. 2006;67(12):2230-2.
Cano SJ, Hobart JC. Measuring multiple sclerosis rehabilitation outcomes. In: Thompson AJ, editor. Neurological Rehabilitation of Multiple Sclerosis. Oxford: Informa Healthcare; 2006.
O'Connor RJ, Cano SJ, Ramio i Torrenta L, Thompson AJ, Playford ED. Factors influencing work retention for people with multiple sclerosis: cross-sectional studies using qualitative and quantitative methods. Journal of neurology. 2005;252(8):892-6.
Cano SJ, Hobart JC, Hart PE, Korlipara LV, Schapira AH, Cooper JM. International Cooperative Ataxia Rating Scale (ICARS): appropriate for studies of Friedreich's ataxia? Movement disorders : official journal of the Movement Disorder Society. 2005;20(12):1585-91.
McNeill A, Cano S, Warner TT. Clinical diagnosis of cervical dystonia. The European journal of general practice. 2004;10(2):73-4; discussion 4.
Cano SJ, Warner TT, Linacre JM, Bhatia KP, Thompson AJ, Fitzpatrick R, et al. Capturing the true burden of dystonia on patients: the Cervical Dystonia Impact Profile (CDIP-58). Neurology. 2004;63(9):1629-33.
Cano SJ, Hobart JC, Fitzpatrick R, Bhatia K, Thompson AJ, Warner TT. Patient-based outcomes of cervical dystonia: a review of rating scales. Movement disorders : official journal of the Movement Disorder Society. 2004;19(9):1054-9.
Cano SJ, Browne JP, Lamping DL, Roberts AH, McGrouther DA, Black NA. The Patient Outcomes of Surgery-Hand/Arm (POS-Hand/Arm): a new patient-based outcome measure. Journal of hand surgery (Edinburgh, Scotland). 2004;29(5):477-85.
Bakheit AMO, Barrett L, Wood J. The relationship between the severity of post‐stroke aphasia and state self‐esteem. Aphasiology. 2004;18(8):759-64.
Warner TT, Cano SJ, Fitzpatrick R, Bhatia K, Thompson AJ, Hobart JC. The Cervical Dystonia Impact Profile (CDIP-58): 1 – Development and Validation. ISOQOL; 2003; Prague, Czech Republic.
Hobart JC, Cano SJ, Thompson AJ, O’Connor R. The Multiple Sclerosis Impact Scale: validation in eight European countries using Rasch technology. ISOQOL; 2003; Prague, Czech Republic.
Cano SJ, Warner TT, Hobart JC. The Cervical Dystonia Impact Profile (CIDP-58): 2 – Comparison of traditional methods and Rasch technology for developing scales. ISOQOL; 2003; Prague, Czech Republic.